HI, I'M JASON!
I have been writing about parenthood with two young special needs kids since I became a father in 2008. Jonny is now 15 and has a rare condition called Kabuki Syndrome. Jonah (10) was nonverbal and diagnosed with Autism in 2016. This blog is a chronicle of our special needs journey together. I mostly post my thoughts on Facebook, but you will also find those posts here.
We are an Ausome Family. We run on an abundance of coffee, loads of patience, a lot of love, and a “Touch of Ausome.”
Thank you for coming on this epic journey with us!
LATEST FROM THE BLOG
Here’s to friends!
Thank you!! Yesterday was an absolute blast. Sunday and Monday we saw our good friends from college who are also…
An eventful day…
Well, today was certainly eventful. Jonny has miraculously switched his sleeping schedule to sleep from around 7:00pm…
*revised* Post-Op and Regression
*After reading this initially my sister pointed out that this was pretty negative (I’m tired and generally get whiny…
Jonny’s Surgery
It’s 6:00 Tuesday. Jonny’s surgery got pushed back from 1:00 to 5:00. He has been in surgery almost an hour. Basically…
Jonny’s hips
Jonny went in for his checkup for his hips a couple days ago. He has a ‘bilateral hip click’ or hip dysplasia where the…
Jonny’s first shots
…Were awful. He was soooo happy the whole appointment. He didn’t fuss or cry at all when the doctor was measuring and…
Getting ready for the REAL world
Today Jonny is 8 weeks! old…which also means Mama has only 4 weeks left until we have to get back to the ‘real world.’…
"modeling photos?"
Daddy having fun with the camera… He was more awake for this session so Daddy played around with lighting more……
New Pics & updates
Things are infinitely better since my last post. Things seem so much worse when you are tired and I was plenty of that…
Medical Shenanigans 2
So today we took Jonny to the doctors office. Not the orthopedic specialist (that's on Monday), not the cleft palate…