So, question for you…


So, question for you guys… I’ve been noticing Jonny sometimes has a tough time identifying signals his body is……

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So we went to the pool today.


So we went to the pool today. Jonah jumped into the pool unaided for the first time... His laughter of accomplishment…

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Kabuki Syndrome can …


Kabuki Syndrome can effect multiple systems throughout the body. Jonny has several “markers” for Kabuki Syndrome and…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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