Kabuki Syndrome can …


Kabuki Syndrome can effect muscle tone and dexterity. Jonny is 12. He has been working very hard and this summer was…

Read More

Jojo let mama into his room…


Jojo let mama into his room for our bedtime routine. This is rare. Usually he pushes her out. But Mama lets Jojo play…

Read More

Being able to go out… (video)


Being able to go out and do fun things like this has had a HUGE positive effect on Jojo (and ALL of us, really) and…

Read More

Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

Privacy Preference Center