Today was the “official” diagn…


Today was the “official” diagnosis day for Jonny. “Jonny has Kabuki Syndrome” It is a mix of emotions, but mostly I’m…

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“Josh, throw ball!”… (video)


“Josh, throw ball!” He’s learning something new every day. Today he ate a nutrigrain bar (for the first time in…

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Jonny has had his st…


Jonny has had his stuffed Darth Vader since he was 3 years old (more than a decade). “Darthy” has practically gone…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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