What do you do……


What do you do… The school texts to say the bus will be at least a half an hour late. The child has a strict morning…

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Kabuki Syndrome can …


Kabuki Syndrome can effect multiple systems throughout the body. Jonny has several “markers” for Kabuki Syndrome and…

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My little trooper….


My little trooper. It’s been a while since we’ve had a lot of medical stuff with Jonny. I’ll take that as a blessing.…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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