Kabuki Syndrome can …


Kabuki Syndrome can effect multiple systems throughout the body. Jonny has several “markers” for Kabuki Syndrome and…

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He ate new food in a new location! (video)


We took Jonah to eat at a fancy restaurant. It was attached to our hotel so it wouldn't be too hard to get him out of…

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So, it took about a …


So, it took about a week and a half and plenty of Vaseline/chapstick but I think we finally got him to stop peeling his…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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