ooh I feel the need to blog.


June 7, 2011| Jason Michael Reynolds|1 Minute
June 7, 2011|By Jason Michael Reynolds|1 Minute

ooh I feel the need to blog.


But I don’t have time right now. Which is the story of this blog. I know you are dying to find out the happenings here, and you will…soon, or as my best friend Beede would say “bumbye.”

So, question for you…


So, question for you guys… I’ve been noticing Jonny sometimes has a tough time identifying signals his body is……

Read More

Kabuki Syndrome can …


Kabuki Syndrome can effect multiple systems throughout the body. Jonny has several “markers” for Kabuki Syndrome and…

Read More

Who is your ‘tribe?’…


Who is your 'tribe?' I never thought I would be in this "boat." Yet here I am. Here we are. You never set out to be…

Read More

Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

Privacy Preference Center