March 20, 2022
Some days I wonder, …
Some days I wonder, “what am I even doing as a parent?” So I took Jonah to the beach today. It was freezing, but he…
March 14, 2022
Jonah! Do you want t…
Jonah! Do you want to wear your mask to school or “mask in your bag” for school? (He’s gonna be so excited to not have…
February 23, 2022
Kabuki Syndrome can …
Kabuki Syndrome can effect multiple systems throughout the body. Jonny has several “markers” for Kabuki Syndrome and…
February 21, 2022
Do you know what’s m…
Do you know what’s more annoying than watching Encanto on repeat or watching Peppa Pig on repeat? …watching Encanto and…
February 21, 2022
Are nosebleeds commo…
Are nosebleeds common with autism? Jonah was picking up his toys last night when I noticed there was blood ALL DOWN HIS…
February 12, 2022
What is the end goal…
What is the end goal of “all of this?” …All the therapies, the interventions, the specialists? Is there a point when my…
February 8, 2022
Dear School District…
Dear School District I appreciate you approving Jonny’s transportation request to take the bus to and from school and…
February 7, 2022
Same place. 2022 and…
Same place. 2022 and 2012. Ten years apart. So many fun memories here! We love our Children's Museum of Tacoma!…
February 7, 2022
Please tell me it’s …
Please tell me it’s not just me. So this first picture came across my memories from 2018. I snapped the 2nd one…
February 6, 2022
So we learned that Jonah’s teacher will be out for another week…(video)
So we learned that Jonah’s teacher will be out for another week (As of last Thursday). When she finally returns, she…









