HI, I'M JASON!
I have been writing about parenthood with two young special needs kids since I became a father in 2008. Jonny is now 15 and has a rare condition called Kabuki Syndrome. Jonah (10) was nonverbal and diagnosed with Autism in 2016. This blog is a chronicle of our special needs journey together. I mostly post my thoughts on Facebook, but you will also find those posts here.
We are an Ausome Family. We run on an abundance of coffee, loads of patience, a lot of love, and a “Touch of Ausome.”
Thank you for coming on this epic journey with us!
LATEST FROM THE BLOG
It’s amazing how many genetic …
It’s amazing how many genetic personality traits are common with Kabuki Syndrome. This could…
Our current situation. (video)
Our current situation. Jonah was sent home 20 minutes after school started because his lip is bleeding and he can’t…
Oh, to be a fly on t…
Oh, to be a fly on the wall at school... One of our many worries as Ausome parents is how our kids are doing at school…
So I’m trying to put together a video for Father’s Day…
So I’m trying to put together a video for Father’s Day and I wanted to get some feedback from you guys. If you have or…
This came home in Jo…
This came home in Jojo’s backpack. We used to paint with him every day until he started eating the paint, putting his…
Taken a few minutes …
Taken a few minutes ago... Do you pick him up and take him to bed risking him waking up and possibly having a……
How do your kids han…
How do your kids handle unexpected stimuli? Doorbells... fireworks... balloons popping? Some of Jonah’s favorite things…
What can you do when…
What can you do when they take late naps? I tried to keep him up. I really did. ...but Jonah had a busy weekend. He is…
Went to the public b…
Went to the public beach today... It went great. After a few hours, Jojo’s swimsuit was pretty wet and started chafing…
“Tentative Arrangements”
Yes. This. I don’t know how many times I’ve had to make “tentative arrangements” because we simply don’t know how Jojo…
What victories are you celebrating?
What victories are you celebrating? Little things are not "LITTLE" things in an Ausome world. Reaching ANY milestone is…
Who can relate?…
Who can relate? The worst is when there’s just a “streaming error.” I mean you’ve been responsible. The device is…
So I know the school…
So I know the school year is just ending, but I wanted to see how you guys get your Ausome kiddos acclimated to a new…
The question is not what you look at, but what you see…
This was my first painting. It was a self-portrait in the style of an artist named Chuck Close. In this style, I…
How do you handle yo…
How do you handle your kids’ food aversions when they are at school? This is basically an exact conversation I’ve had…
