HI, I'M JASON!
I have been writing about parenthood with two young special needs kids since I became a father in 2008. Jonny is now 15 and has a rare condition called Kabuki Syndrome. Jonah (10) was nonverbal and diagnosed with Autism in 2016. This blog is a chronicle of our special needs journey together. I mostly post my thoughts on Facebook, but you will also find those posts here.
We are an Ausome Family. We run on an abundance of coffee, loads of patience, a lot of love, and a “Touch of Ausome.”
Thank you for coming on this epic journey with us!
LATEST FROM THE BLOG
This came across my memories t…
This came across my memories today from when Jonny was little. I swear, he has been wired like this literally from BIRTH. 🥹🤪 #ausome #kabukisyndrome #myraretreasure
I say we celebrate #allVictories
I say we celebrate #allvictories because we break each task into small steps. And with every step is another victory.…
So Mama just got a n…
So Mama just got a new car. This is why we left the kids at home while we were out car shopping. oops?? 🤷♂️ "A couple…
Jonah has figured ou…
Jonah has figured out “present-opening.” And as he’s opening, if he sees something that catches his eye... THAT IS WHAT…
So proud of this kid…
So proud of this kid. We had his IEP meeting today and he has been ROCKING it at school. He just received the Student…
Notes home from the …
Notes home from the teacher give me anxiety... I mean, if I get a note home, SOMETHING happened that day. And with…
Jonah legit made this whole thing on his own.
Jonah legit made this whole thing on his own. This kid never ceases to amaze me. #Ausome Original Facebook Post.
I just see water. Jonah sees something more…
I just see water. Jonah sees something more. I see sand. Jonah finds something more. So many things I discount as…
So Papa took Jonah to McDonalds today.
So Papa took Jonah to McDonalds today. Jojo had chicken nuggets for lunch... He Came home... ...had dinosaur chicken…
Jonah’s teacher is m…
Jonah’s teacher is my kinda people. I mean, yeah, Jonah threw a chair, but at least it wasn’t AIMED at anyone this…
You know why today is a good day?
You know why today is a good day? Because when I woke up this morning... it was 6:30am. I came across this memory from…
This is so hard… especially when the sibling isn’t neurotypical either.
This is so hard... especially when the sibling isn’t neurotypical either. Developmentally, Jonah just needs a “higher”…
I’m a bit hesitant to share this one…
I’m a bit hesitant to share this one. Our family took a trip to Disneyland in October (will write about that later),…
Every night, Jonah w…
Every night, Jonah wanders into our bedroom and climbs into bed with us. Today I got up at zero-dark-30 after I…
So I Got a call home…
So I Got a call home from the school nurse. Some kid threw a toy and hit Jonah on the head. He's fine. 1st thought…
I recently watched the Pixar short film, “Float,”…
I recently watched the Pixar short film, "Float," about a boy and his Dad and their journey together, featured on the…