HI, I'M JASON!
I have been writing about parenthood with two young special needs kids since I became a father in 2008. Jonny is now 15 and has a rare condition called Kabuki Syndrome. Jonah (10) was nonverbal and diagnosed with Autism in 2016. This blog is a chronicle of our special needs journey together. I mostly post my thoughts on Facebook, but you will also find those posts here.
We are an Ausome Family. We run on an abundance of coffee, loads of patience, a lot of love, and a “Touch of Ausome.”
Thank you for coming on this epic journey with us!
LATEST FROM THE BLOG
Lately Jonny has bee…
Lately Jonny has been saying his eyes hurt when he is looking at the screen for long periods of time during school.…
Okay Disney Pixar, w…
Okay Disney Pixar, we need to talk. Today you released a new Toy Story Short on Disney+. First of all, let me say this.…
STORECATION…
STORECATION You know when you need a vacation but you can’t go anywhere because there’s a global pandemic? So you book…
You guys. Brother b…
You guys. Brother bonked Jojo’s head while playing on the Kinect. So obviously Jojo requested a bandaid. All bonks,…
So Jonah is 7 now an…
So Jonah is 7 now and loves to be outside. He won’t wear a mask so we try not to go to places with a lot of other…
I think the hardest …
I think the hardest part of tonight’s meltdown... aside from the hitting, kicking, biting and hurling everything in…
It was freezing and …
It was freezing and rainy today. Jonah wanted to go see the geese this morning. I explained to Jonah that it was very…
I completely forgot …
I completely forgot this happened last year. I didn’t remember even writing about it. It’s been one of those years... I…
“Oh, you stupid tree…
“Oh, you stupid tree...” So today we put up our Christmas Tree... We have had different varieties of trees in the……
Happy 7th Birthday Jonah…
Happy 7th Birthday Jonah. Today, we celebrate you. We love you. We are so proud of you. We are so happy you came into…
So true. (Love this…
So true. (Love this from Maddox's Autism Chronicles) Let's chit chat for a moment. Please never say to a special…
Hey! I recognize that kid there in the middle!
Hey! I recognize that kid there in the middle! That's my Jonny-boy, on that The Kabuki Gathering image! So, Kabuki…
Today is an “asynchr…
Today is an “asynchronous learning” day. I guess Jonah gets an “A” for today. ☺️
This kid just rocked…
This kid just rocked his dental appointment. Had to get a filling and everything. The worst part about the visit was…
Dear Ms. [Teacher]…
Dear Ms. [Teacher] Thank you for taking the time out of your personal life to stop by our house on a weekend just to…
Kabuki Syndrome can …
Kabuki Syndrome can effect muscle tone and dexterity. Jonny is 12. He has been working very hard and this summer was…