Kabuki Syndrome can …


Kabuki Syndrome can effect multiple systems throughout the body. Jonny has several “markers” for Kabuki Syndrome and…

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**(So I ran my own w…


**(So I ran my own website "blog" up until a little over a year ago, but stopped posting to it for a few different…

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Celebrate Every Step Forward


We reached this point when Jonny was an infant. He was less than the 3rd percentile for his height and weight for his…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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