Today was the “official” diagn…


Today was the “official” diagnosis day for Jonny. “Jonny has Kabuki Syndrome” It is a mix of emotions, but mostly I’m…

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“Jojo thirsty.”…


“Jojo thirsty.” I have to take a moment to reflect on our progress for the times when I feel we have plateaued or…

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A day in the life…… (video)


A day in the life... Today was sunny and warm enough to play outside much to Jonah's delight. We spent the afternoon at…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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