Today was the “official” diagn…


Today was the “official” diagnosis day for Jonny. “Jonny has Kabuki Syndrome” It is a mix of emotions, but mostly I’m…

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Getting ready for the REAL world


Today Jonny is 8 weeks! old…which also means Mama has only 4 weeks left until we have to get back to the ‘real world.’…

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I try not to think o…


I try not to think of the “distant future” too often. It triggers my anxiety and it simply gets overwhelming thinking…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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