I think one of the hardest thi…


I think one of the hardest things about this journey is the developmental uncertainty. Here’s what I mean by that. When…

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Celebrate Every Step Forward


We reached this point when Jonny was an infant. He was less than the 3rd percentile for his height and weight for his…

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Jonny, my oldest doe…


Jonny, my oldest does not have any specific diagnosis. The geneticist is convinced there IS a genetic component…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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