Kabuki Syndrome can …


Kabuki Syndrome can effect multiple systems throughout the body. Jonny has several “markers” for Kabuki Syndrome and…

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So the school year is coming to a close…


So the school year is coming to a close, and we are starting to think about Kindergarten classes for Jojo. When Jonny…

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Part of the reason I…


Part of the reason I run this page is so I can tell you all about our journey. If you want to know anything about it,…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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