What is the end goal…


What is the end goal of “all of this?” …All the therapies, the interventions, the specialists? Is there a point when my…

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Guess who…


Guess who dressed Jonny today (Red shirt & warm-up pants)?

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Kabuki Syndrome can …


Kabuki Syndrome can effect multiple systems throughout the body. Jonny has several “markers” for Kabuki Syndrome and…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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