Kabuki Syndrome can …


Kabuki Syndrome can effect multiple systems throughout the body. Jonny has several “markers” for Kabuki Syndrome and…

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Hey folks!!…


Hey folks!! Part 2 of last minute gift ideas here for you. These are actually a few of the gifts we are getting for…

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When Jonny, our oldest was born…


When Jonny, our oldest was born, he was born with bilateral hip dysplasia (dislocated hips) and a cleft palate. He went…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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