Kabuki Syndrome can …


Kabuki Syndrome can effect muscle tone and dexterity. Jonny is 12. He has been working very hard and this summer was…

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Lets see those family photos!!


Lets see those family photos!! We don’t really do them much anymore... I wonder why?... Original Facebook Post.

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Jonny’s got a blood …


Jonny’s got a blood draw today for his genetic testing. Needles. 😬😬😬

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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