Kabuki Syndrome can …


Kabuki Syndrome can effect multiple systems throughout the body. Jonny has several “markers” for Kabuki Syndrome and…

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What ‘Victories’ are you celebrating?


What 'Victories' are you celebrating? This morning, Jonah slept in. (This is an accomplishment in and of itself). By…

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Jonny’s Recasting


I am happy to say that I have nothing to really report about Jonny's recasting other than it went as expected. The…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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