Kabuki Syndrome can …


Kabuki Syndrome can effect muscle tone and dexterity. Jonny is 12. He has been working very hard and this summer was…

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I’m grateful for a family who “gets it.”


I'm grateful for a family who "gets it." Who understands that my child is 'my child,' and that I know him better than…

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Who is in your “trib…


Who is in your “tribe” that you haven’t actually met? I am truly grateful for every person who follows us down this…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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