Today was the “official” diagn…


Today was the “official” diagnosis day for Jonny. “Jonny has Kabuki Syndrome” It is a mix of emotions, but mostly I’m…

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Celebrate Every Step Forward


We reached this point when Jonny was an infant. He was less than the 3rd percentile for his height and weight for his…

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An eventful day…


Well, today was certainly eventful. Jonny has miraculously switched his sleeping schedule to sleep from around 7:00pm…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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