Kabuki Syndrome can …


Kabuki Syndrome can effect multiple systems throughout the body. Jonny has several “markers” for Kabuki Syndrome and…

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August – "Potporri"


August has been a whirlwind month. We took Jonny to the zoo for the first time with our good friends visiting and their…

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The wisdom of Jonny


So Jonny has his annual IEP meeting tomorrow. He works hard, but he struggles to focus sometimes. We are working very…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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