The fear of uncertainty.


Jojo had a meltdown for about half an hour at bed time last night. We got him a new bed tent and he liked it during the…

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Jonny’s Surgery


It’s 6:00 Tuesday. Jonny’s surgery got pushed back from 1:00 to 5:00. He has been in surgery almost an hour. Basically…

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Kabuki Syndrome can …


Kabuki Syndrome can effect muscle tone and dexterity. Jonny is 13. He has been working very hard and last summer was…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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