Kabuki Syndrome can effect muscle tone and dexterity.

Jonny is 12. He has been working very hard and this summer was finally able to tie his shoes for the first time. We are continuing to build up those muscles.

He’s now in middle school and has started weekly “drawing” assignments in his art class.

This represents a TON of hard work and effort for Jonny.

I couldn’t be more proud of him.

It warms my little art major’s heart.

My little artist.

#KabukiSyndrome #ausome

Original Facebook Post.