Kabuki Syndrome can …


Kabuki Syndrome can effect multiple systems throughout the body. Jonny has several “markers” for Kabuki Syndrome and…

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We have sort of been…


We have sort of been in “cruise control” for a couple months. We’ve figured out some “doable” routines for Jonah, but…

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We try. We really do…


We try. We really do. Especially around this time of the year. When we start thinking about gasp Christmas coming…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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