Kabuki Syndrome can …


Kabuki Syndrome can effect multiple systems throughout the body. Jonny has several “markers” for Kabuki Syndrome and…

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So much of this jour…


So much of this journey is patience. The hardest part is figuring out when to 'wait it out' or when to make changes.…

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I know you Ausome parents can relate! (video)


I know you Ausome parents can relate! Jojo ate mac'n'cheese! A food he hasn't touched in ages! WOOOOOOT!!!…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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