Kabuki Syndrome can …


Kabuki Syndrome can effect multiple systems throughout the body. Jonny has several “markers” for Kabuki Syndrome and…

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So the fireworks wok…


So the fireworks woke Jonah up at midnight. He walked into our room and climbed into bed with us. So I got up as I…

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Came across this pho…


Came across this photo today. Jonny was probably 5 years old, at the state fair. I remember taking this photo and…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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