Kabuki Syndrome can …


Kabuki Syndrome can effect multiple systems throughout the body. Jonny has several “markers” for Kabuki Syndrome and…

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Our future is NOT set in stone.


One thing I have learned on this journey is that our future is NOT set in stone. When we first received Jonah's…

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Are you as cool as my baby brother?


We were at one of Jonny's doctor's appointments and they needed to hear him "talking" so they could assess his speech.…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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