What is the end goal…


What is the end goal of “all of this?” …All the therapies, the interventions, the specialists? Is there a point when my…

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Jonah learned a new word… (video)


Jonah learned a new word. And I will celebrate it with him. EVERY TIME. The journey from where we started to where we…

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Kabuki Syndrome can …


Kabuki Syndrome can effect muscle tone and dexterity. Jonny is 12. He has been working very hard and this summer was…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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