Kabuki Syndrome can …


Kabuki Syndrome can effect muscle tone and dexterity. Jonny is 13. He has been working very hard and last summer was…

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So Jonah is 11 now and LOVES f…


So Jonah is 11 now and LOVES fishing with my dad. (My dad took this picture) Jojo loves to go out on his boat and…

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Five years ago today…


Five years ago today… I still get a little pit in my stomach remembering the anticipation of “diagnosis day.” Wow… how…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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