What is the end goal…


What is the end goal of “all of this?” …All the therapies, the interventions, the specialists? Is there a point when my…

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**(So I ran my own w…


**(So I ran my own website "blog" up until a little over a year ago, but stopped posting to it for a few different…

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Kabuki Syndrome can …


Kabuki Syndrome can effect muscle tone and dexterity. Jonny is 13. He has been working very hard and last summer was…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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