Kabuki Syndrome can …


Kabuki Syndrome can effect muscle tone and dexterity. Jonny is 13. He has been working very hard and last summer was…

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Jonny’s Haircut


We took Jonny to get a haircut yesterday and he was not impressed. He did just fine until the clippers came out. He…

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You just get on with it ….


You just get on with it . People tell me I must be used to being tired I am used to it yes but you still feel it Things…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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