Today was the “official” diagn…


Today was the “official” diagnosis day for Jonny. “Jonny has Kabuki Syndrome” It is a mix of emotions, but mostly I’m…

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I can tell therapy s…


I can tell therapy sessions are back in full swing because... Jonah was eating ice cream just a bit ago. After each…

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Jonny’s got a blood …


Jonny’s got a blood draw today for his genetic testing. Needles. 😬😬😬

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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