Today was the “official” diagn…


Today was the “official” diagnosis day for Jonny. “Jonny has Kabuki Syndrome” It is a mix of emotions, but mostly I’m…

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Today was a “teaser”…


Today was a “teaser” of springtime. It reached nearly 75°F here today (24°C) so of course Jojo went “full summer” mode…

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The fear of uncertainty.


Jojo had a meltdown for about half an hour at bed time last night. We got him a new bed tent and he liked it during the…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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