Kabuki Syndrome can …


Kabuki Syndrome can effect multiple systems throughout the body. Jonny has several “markers” for Kabuki Syndrome and…

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Late night. Up early…


Late night. Up early. Late night. Up early. Rinse and repeat. At least he only kicked me out of bed at 5am this time…

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Thank you!


Who are you grateful for? Some people in our journey deserve so much more than a simple "thank you" for all they have…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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