Kabuki Syndrome can …


Kabuki Syndrome can effect multiple systems throughout the body. Jonny has several “markers” for Kabuki Syndrome and…

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2017 – A Day in the life… (video)


Went to the park with the boys. Sometimes these trips are hit or miss, depending on who else is there. Jonah has a…

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So, we finally got J…


So, we finally got Jonah’s hair cut today. It’s been like 6 months. It was a lot more effort than usual. I called…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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