Being able to go out… (video)


Being able to go out and do fun things like this has had a HUGE positive effect on Jojo (and ALL of us, really) and…

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This came across my memories t…


This came across my memories today from when Jonny was little. I swear, he has been wired like this literally from…

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Kabuki Syndrome can …


Kabuki Syndrome can effect muscle tone and dexterity. Jonny is 13. He has been working very hard and last summer was…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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