Today was the “official” diagn…


Today was the “official” diagnosis day for Jonny. “Jonny has Kabuki Syndrome” It is a mix of emotions, but mostly I’m…

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A “work-in-progress”


Mama has had the week off of work, which has been nice, but also is not part of our routine (Mama being home on school…

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Jonah had a haircut today…


Jonah had a haircut today. It was completely uneventful. ...Which is A HUGE ACCOMPLISHMENT considering where we…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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