My “very happy” boy (video)


My little goofball is snuggled in bed with his visual feast of a light show giggling and giggling for no particular…

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Kabuki Syndrome can …


Kabuki Syndrome can effect muscle tone and dexterity. Jonny is 12. He has been working very hard and this summer was…

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Absolutely. It’s so …


Absolutely. It’s so nice to have people who “get it” and not have to apologize when Jojo is being “Jojo.” [love this…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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