Kabuki Syndrome can …


Kabuki Syndrome can effect multiple systems throughout the body. Jonny has several “markers” for Kabuki Syndrome and…

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Jonah had a haircut today…


Jonah had a haircut today. It was completely uneventful. ...Which is A HUGE ACCOMPLISHMENT considering where we…

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Jonny, my oldest doe…


Jonny, my oldest does not have any specific diagnosis. The geneticist is convinced there IS a genetic component…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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