Kabuki Syndrome can …


Kabuki Syndrome can effect multiple systems throughout the body. Jonny has several “markers” for Kabuki Syndrome and…

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So I was randomly chit-chatting … (video)


So I was randomly chit-chatting with one of Jonah's (Ausome 6-year-old) paras last June and she asked about Jonny…

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“The world needs to …


“The world needs to be more accommodating for my child.” Many of us have this same sentiment for our children. We will…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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