I think one of the hardest thi…


I think one of the hardest things about this journey is the developmental uncertainty. Here’s what I mean by that. When…

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A Midnight Meltdown


**This was written about 1:30 this morning. I posted it to my Facebook page, but I thought I'd memorialize it here.…

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Kabuki Syndrome can …


Kabuki Syndrome can effect muscle tone and dexterity. Jonny is 12. He has been working very hard and this summer was…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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