Kabuki Syndrome can …


Kabuki Syndrome can effect multiple systems throughout the body. Jonny has several “markers” for Kabuki Syndrome and…

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Jonah at the ocean (video)


So proud of Jojobee! The first day we came to the beach, he ran straight at the ocean and a wave put him on his back…

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We have been back to…


We have been back to the beach 3 days in a row now. Every day, Jonah will make these in the sand and leave them there.…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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