Kabuki Syndrome can …


Kabuki Syndrome can effect muscle tone and dexterity. Jonny is 13. He has been working very hard and last summer was…

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Booger high-fives!


Hey! How is your weekend going? It's Saturday. We get to sleep in. (pfft!)😝 One parent was up at 4:15. Another one was…

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I have to believe …


😕 I have to believe that things will get better. And if necessary, be the agent of change that MAKES things better.…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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