So the fireworks wok…


So the fireworks woke Jonah up at midnight. He walked into our room and climbed into bed with us. So I got up as I…

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Today was the “official” diagn…


Today was the “official” diagnosis day for Jonny. “Jonny has Kabuki Syndrome” It is a mix of emotions, but mostly I’m…

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How do you take care of yourself?


How do you take care of yourself? Self-care is super important when you are a care-giver. I'm sure you've heard the…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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