Kabuki Syndrome can …


Kabuki Syndrome can effect muscle tone and dexterity. Jonny is 13. He has been working very hard and last summer was…

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Yep, the shirt is on backwards. (video)


Yep, the shirt is on backwards. Because today, just getting it on him was a #smallvictory Happy Tuesday! -cheers!……

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A “work-in-progress”


Mama has had the week off of work, which has been nice, but also is not part of our routine (Mama being home on school…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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