Kabuki Syndrome can …


Kabuki Syndrome can effect multiple systems throughout the body. Jonny has several “markers” for Kabuki Syndrome and…

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Jonny got glasses to…


Jonny got glasses today and now he looks like he’s like 17 and I don’t know how I feel about that! 😭😭😭…

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A “work-in-progress”


Mama has had the week off of work, which has been nice, but also is not part of our routine (Mama being home on school…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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