Kabuki Syndrome can …


Kabuki Syndrome can effect muscle tone and dexterity. Jonny is 13. He has been working very hard and last summer was…

Read More

A day in the life…… (video)


A day in the life... Today was sunny and warm enough to play outside much to Jonah's delight. We spent the afternoon at…

Read More

So I opened up the f…


So I opened up the fridge and... “What the..” Apparently, Jonah is insisting on keeping “mermaid” in the fridge. 🤷‍♂️…

Read More

Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

Privacy Preference Center