Today was the “official” diagn…


Today was the “official” diagnosis day for Jonny. “Jonny has Kabuki Syndrome” It is a mix of emotions, but mostly I’m…

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Tonight is a “victory night”


Tonight is a "victory night" because I can make a 6pm pot of coffee to make it through the bed time routine and still…

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Lisa Lambertus art


Lisa Lambertus is a very talented artist and an Ausome parent. This is a painting she did of her Ausome son. Being both…

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Jason Michael Reynolds

Writer. Photographer. Ausome Parent.

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